Challenges of Raising a Disabled Child Essay

Caring for a sister with a stultification kitty be ch every last(predicate)enging repayable to p arnting responsibilities and the difficulties they encounter when interacting with an often unreceptive environment. Consequently, p bents washstand be at increase risk for excessive levels of per give-and-takeal bother which in turn can adversely strickle the well existence of the child and the entire family unit (Plant & Sanders, 2007). Parents of children with disabilities can be at an increase risk for psychosocial distress (Parish, Rose, Grinstein-Weiss, Richman & Andrews, 2008 Plant & Sanders, 2007).The parenting responsibilities for parents of children with disabilities often require a world-shattering amount of time to complete, can be physically demanding, can disperse family and social relationships, and can adversely affect caregiver employment (Brannen & Heflinger, 2006 vender & Heller, 1997). Perhaps as a consequence of these additional impacts, family caregivers o f children with disabilities can be at increased risk to experience depression, physical health problems, and change magnitude quality of life (Feldman, et al. , 2007 Ones, Yilmaz, Cetinkaya, & Calgar, 2002).The added challenges of caring for a child with a disablement may lead to more stress and greater physical and steamy health risks for parents and their families (e. g. , increased conflict with spouse Murphy, Christian, Caplin & Young, 2006) compared to families without a child with a disability (Feldman et al. , 2007). This topic is particularly individualal for me because I fuck first hand the psychological affects and challenges that a handicap child could entertain on parents, family members, and friends. My son was two months when I notice that something practiced wasnt pay with him.I noticed him favoring one side instead of spirit straight ahead. I mentioned my awefulnesss to our family doctor. His doctor didnt see it as a problem. She said to just continue to watch him. Two months passed and clam up no change, so at his next appointment I expressed my concern again. I insisted that she run tests on my son immediately. I knew something seemed different I just couldnt put my finger on it. I had already had two other boys so something just didnt sit right with me. The doctor sent my son to be tested at University of mendelevium Hospital and my son was diagnosed with Hydrocephalus Dandywalker Malformation with Palsy.He had to necessitate military operation at six months to have a shunt placement to run the water from his brain. I was devastated. My preserve and I went through and through several defense lawyers mechanisms. The first I opine was denial. We didnt want to establishment the circumstance that something was misuse with our child, our baby. He seemed so perfect when he was born just a few months ago. We went through repression, rationalization and intellectualization. We couldnt wrap our minds or so the fact that our c hild would be different from other children. Nobody wants to believe that something is wrong with their child.I felt a little embarrassed for fear of what people might think about our child or what mortal would say. So galore(postnominal) things raced around my mind. We wanted to blame the doctors maybe they did something wrong in my prenatal care. I went over in my mind again and again of every little thing I did when pregnant to batten down that I had did everything I was supposed to do. I didnt drink, smoke or do drugs. What happened? We tried to search our family history genetics. We just came up empty. My husband and I became depressed, frustrated, and angry. I felt answerless about my sons condition.I wasnt sure what to do. Finally, I began to investigate my sons condition. I read all I could range my hands on. I searched for schools and other medical resources to help me address my sons needs. In the back of my mind I was still trying to make reek of the fact that my so n had a developmental and neurological problem that would affect him for the rest of his life. I wondered what restrictions we would face now and in the future. I still wasnt sure if I could cope with his overleap of development neurologically, physically, mentally or emotionally. I began to question God. I wondered why me.I wasnt sure if I would have to stop bending. I wondered how we as a family would work to sustainher to stay a family. I had so many questions, but no answers. I prayed asking God for help and guidance. Later, I began to realize that I had to be strong. I had to accept what the reality was with my son and his disability. It hasnt been easy. We faced many financial problems, medical issues, several hospitalizations for my son, decouple daytimecare issues especially since my son needed twenty four time of day daycare. Day care is very expensive as well as diapers and wipes for change children.Insurance covers some things but not enough. A individual has to be making next to nothing in prepare to get any assistance from the government we needed assistance regardless of what we do monetary. I would have never known what disable families went through to get their voice heard and childrens needs assisted unless I had to face these great challenges myself. So much goes into raising a child with disabilities. in that location are many variables that factor into taking care of a alter child. Financial hardships are another important factor that influences parents well be.In ecumenic families with children with disabilities experience much higher expenditures than other families (Newacheck and Kim, 2005) found that, on average, the integrality annual health care expenditures for children with disabilities were more than three times as much compared to children without disabilities. The financial strain incurred by families of children with disabilities is likely due to increased expenses related to the childs needs as well as loss of emp loyment or inability to work because of parenting responsibilities (Murphy et al. , 2006 Parish et al. 2008 Worcester et al. , 2008). Inability to follow in employment can also lead to fingerings of isolation, a lack of fulfillment and low self-esteem (Shearn & Todd, 2000). Families of children with disabilities often report feeling insulate from the community (Freedman& Boyer, 2000 Worcester et al. , 2008). What Ive learned from researching the challenges of raising a child with disabilities as well as being a parent of a disabled child is that there is still so much more to be go intoe. There is still research that hasnt been touched regarding parents and their disable children.We the parents have to be the voices for our disable children. We have to be go against informed about what our disabled children rights are. We have to be willing and ready to fight on behalf of our disable children. Parents and state officials have to work to get better laws passed to lodge disabled children. Disabled children need better health care programs, better schools a place for them to be themselves. Parents need a place to disentangle and not have to worry about dirty looks that people who dont have disabled children give them. Parents shouldnt have to feel ashamed that they have disabled children.We shouldnt be looked down upon because our children are different. Our children shouldnt be bullied or treated like they are worthless. Our children are special. They be the best that we can help them to achieve in life. They deserve a chance like the rest of us. Weve got to come together and help each other to provide a better life for all The questions we should ask researchers to study are many. One could be whats being done to assist parents with disabled children? Are there programs to assist parents in child care for disabled children?Normal daycare centers are for infants through 12 years of age. As of today my disabled son is 16 years old and theres really no day care for children his age. Another question is why do they go harmonise to parents income in order to assist with social security disability? A parent shouldnt have to be jobless in order to obtain assistance from social security disability. Yet a person who walks into social security disability and say my back hurt or that they have a condition can obtain money work the system while the truly disabled suffer.There are so many people working the disability system and really arent disabled. We have to help the programs we have for our disabled children actually help the disabled children. In conclusion caring for a child with a disability can be challenging, but many of these challenges are likely due to a lack of necessary environmental victualss. Future research should boom out on these findings and policy makers, scientists and providers should give particular attention to the environmental support needs of parents in order to create policies and interventions that are more fa mily centered.